To recognise World Thalassaemia Day 2021 the Student Council have released an inspirational interview with a member of the team.
Our Student Council Entertainments Officer, Hafizah is passionate about recognising World Thalassaemia Day and has decided to openly share her experience of the blood disorder.
“Raising awareness allows myself and other people with Thalassaemia to have a voice and to be heard.”
Thalassaemia is the name for a group of inherited conditions. People with Thalassaemia produce either no or too little haemoglobin, which is used by red blood cells to carry oxygen around the body. It’s a life long illness. Hafizah shares that in her experience, Thalassaemia is quite an unknown and links the fact that it is a hidden illness to why so many people may be unfamiliar with the disorder. She can become “tired really quick and out of breath” and often will find herself having to explain the reason why. Hafizah spoke about her monthly blood transfusions which can take up to 7 hours.
“During this time I would complete some of my coursework, talk to my friends and families or listen to music to take my mind off the process.”
Following the interview Hafizah reflected on the opportunities that she had experienced because of Thalassaemia, such as a trip to America when she was younger. There is a powerful sense of closeness between Hafizah and her Mum who is with her at every appointment. Also a very close circle of supportive friends who rely on Hafizah’s kindness and understanding as much as she can rely on theirs.
“Thalassaemia has made me who I am today and I am proud of that.”
Thank you to Hafizah for championing this project and sharing her words. Further thanks to Hajrah for an amazing interview and Anisa + Aneesah for supporting.
If you a student who feels they need further support with their physical or mental health please speak to your Personal Progress Tutor.
Here is our favourite photo from the day!